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Much has been said about Bill and Emma Keller’s very public war on Lisa Bonchek Adams, a woman blogging and tweeting about her life as a stage IV cancer patient. You can find Bill’s post here. Emma’s post caused enough of a stir that the Guardian took it down, but here’s a link to the cached version.

I read both Keller posts and think they’ve lost their minds. I don’t know where they’re coming from; I don’t know why this married couple decided to use their bully pulpits at two major newspapers (Emma at the Guardian; Bill at the New York Times) to bully a woman dealing with Stage IV cancer. I don’t know why Bill Keller didn’t report facts correctly. I don’t know why Emma did not reveal to Lisa that she was going to use private messages in her very public story.

I don’t know why it irks Emma Keller that Lisa is “dying out loud. On her blog, and, especially, on Twitter.” But certainly, it irked her enough to write a story about the wrongness of such a public discussion.

Emma wonders: “should there should be boundaries in an experience like this? Is there such a thing as TMI? Are her tweets a grim equivalent of deathbed selfies, one step further than funeral selfies? Why am I so obsessed?”

Maybe Emma is obsessed because she, herself, is a breast cancer survivor. She blogged about her double mastectomy in 2012 – just one post, and then no more. Maybe Emma realizes there’s an audience for a discussion of dealing with breast cancer treatment. And maybe, just maybe, this is a discussion that terrifies Emma, cancer survivor that she is, and so instead of looking away from the blogs and tweets, she attacks Lisa for writing about her struggles. I don’t know. All I know is that a cancer survivor’s attack on a Stage IV cancer patient for writing about being a Stage IV cancer patient reeks of irrationality and fear.

Bill, for some inexplicable reason, decided to follow up on his wife’s controversial post with one of his own in the New York Times. The “heroic measures” he thinks Lisa should take are to simply stop talking and die like his 79-year-old father-in-law did after being diagnosed with cancer. “He died gently,” Bill noted.

“In October 2012 I wrote about my father-in-law’s death from cancer in a British hospital. There, more routinely than in the United States, patients are offered the option of being unplugged from everything except pain killers and allowed to slip peacefully from life. His death seemed to me a humane and honorable alternative to the frantic medical trench warfare that often makes an expensive misery of death in America.”

But quite frankly, I don’t know why Bill thinks that Lisa Adams should emulate his 79-year-old father-in-law’s approach to cancer. Lisa is not just some elderly patient relentlessly pursuing hopeless and expensive treatments in search of just a few more days.

First, she’s not dying. She’s living with cancer. She’s getting palliative treatments to help her manage the pain of cancer.

And she’s not an old person at the end of a very long life. She’s young. And she’s a mother whose children are 15, 11 and 7.

And she’s blogged about how terrifying this is – to be a cancer patient who has children who are so young. Here’s a section from one of her poems about the nightmares cancer brings (I encourage you to read the entire poem, which you can find here:

I will be there, with them, but only in memories.
It will have to be enough.
But I know it won’t be.
After all,
This is what cancer nightmares are made of.
This is what grief does.
I cannot do more, be more, than I am right now.
But I can want more.
It is a parent’s prerogative.

I am greedy.

I make no apologies for wanting to see the things I want to see,
Wanting to share the things I want to share,
Wanting to live the life I want to live.

So I don’t know why Bill feels comparing the death of his 79-year old father-in-law is in any way remotely comparable to what Lisa Adams is going through. And I don’t know why the Kellers feel that enhancing the conversation about “end-of-life” heroic measures should be framed in dual attacks on a young mother dealing with cancer.

I come at this from the perspective of the someone who lost both parents to cancer by the time I was 22. My mother died of metastatic breast cancer when I was 12; she was 41. My father died of metastatic kidney cancer when I was 22; he was 54.

What I know from my experience – every day matters to a mother who is dealing with cancer. When my mother’s cancer came back, she was told she had just nine months to live. She lived 18 months instead. The doctors told us that her will to live was so strong because she did not want to leave us, her children. She wanted to stay with us as long as she could. And that will to live doubled her time with us. She got to see me win first place in a horse show; she got to see me with my braces off. She had nine more months to live with us than the doctors thought possible. And I appreciate those nine months, even as I mourn all the months lost since.

That’s why Lisa is doing what she SHOULD do – she should explore EVERY avenue available to her to stay alive. She’s not just doing this for herself. She’s doing this for her children. That’s what the Kellers don’t understand. And that’s why their columns are so stupidly misguided and offensive.

Been gone a while…

It’s been several years since I’ve posted on this blog. I’ve left the sippy cup stage of parenting – once, it seemed that sending children off to school would mean more time for me. How wrong I was!

I’ve also experienced massive life changes – a move from the Midwestern prairie where I’ve spent most of my life to the Blue Ridge mountains south of the Mason-Dixon line – from Chicagoland, the third largest metropolitan area in the country, to a rural mountain town in Appalachia. And my work has shifted from freelance writing for corporate clients to teaching (for now) at the college level.

But most importantly, I’ve pondered the ethical question of what to write about my children. How much of their lives can I claim for mine? How much of their lives should remain private? My oldest graduates from middle school this spring; my girls are in 4th grade. Life is swift and the moments with my children are precious. But how much of that do I publish to the world? It’s a dilemma…

In my next post, I look at an ethical dilemma of another kind…

…And it will make them happy?

Before answering that question, let me set the stage. My girls are at the beach with their 15 year old cousin. They’re having a fabulous time, until Lindsey cuts her foot somehow. Unlike most people, Lindsey has somehow figured out how to cut her foot on the top of a toe, not on the bottom of her foot. (My children have always shown immense creativity when it comes to injuries!)

Blood, water and sand made for a dramatic wound. The amount of blood left Lindsey in hysterics. My niece had her hands full, then she noticed Nora was on the verge of wailing herself. So my niece suggested that Nora head over to the nearby playground, to play, catch her breath, calm down, so that the lifeguard and my niece could tend to Lindsey.

Nora ran off for all of one minute. Then she raced back to her sister. “Lindsey!” she shouted. “Look – I have an inchworm to make you feel better!”

And it did.

So when faced with hysterics, find yourself an inchworm. It’s just the thing for calming down hysterical little girls. At least in my world, it is!

This is life…

I was on the phone the other day, talking with a friend of mine. My husband was out on a bike ride, so I was on the phone while alone in the house with children.

(Can you see where this is going?!)

I’m at the stage where chatting on the phone with friends is as rare in my life as large diamonds, but my friend and I were chatting about a dear friend who had died last weekend. We were both overwhelmed with the news and, frankly, we were both a little teary.

Clearly, this was an important conversation.

Then, suddenly, all hell starts breaking loose upstairs, where my children have been sent to get ready for bed.

It is difficult in my house for my children to get ready for bed without proper supervision. There are all sorts of battles that can erupt – over who gets the toothpaste first; who stands where at the sink; who gets to use the toilet first, etc. and so on.

From the sound of it, there was a major war going on upstairs. And I am rather irritated because I am alone without the hubby to help and I want to be talking on the phone with my friend about my dear friend and all hell is breaking loose and from the sound of it, if I don’t go upstairs to stop the war, there may be casualties.

Then my son comes down, giggling hysterically. “Mom,” he says, ” they’re fighting about who farted the loudest!”

My two six-year-old girls, dainty flowers that they are, were at war over the sounds of their farts. Not sure if the louder fart was the winner or loser in that battle, but there you go. A new battlefield had been established. And there was a sound and fury to the war that had grown exponentially in just moments.

I decided to plunge into the fray. I explained the situation to my friend, who was astonished to have our conversation about grief interrupted by a story about farts. I went up into the battle zone with the phone so she could hear.

When I entered the bedroom, it was obvious the battle had shifted from farts to beds. One girl had pulled down the covers of the other girl’s bed. Both were screeching at the top of their lungs.

I held the phone up so my friend could hear it all. And she heard my girls screeching the exact same thing to me. “Stop looking at me!” “Stop LOOKING at me!”

And because they are identical twins, the tone and sound of the statement sounded exactly the same – as if one person was fighting with herself.

My friend and I couldn’t help it. We both burst out laughing. And we both knew that our dear friend who died last weekend would have laughed the loudest. In this moment of grief and loss, laughter rang out, and I was reminded once again that life is complex. Emotional. Contradictory. Life is war and anger and love and grief in one room. And life is laughter. Never forget the laughter.

To be frank, I thought the idea of the “montessori graduation” to be a bit overwrought. Caps and gowns. Pomp and circumstance.

For people who were six years old.

I thought the woman in front of me was a tad overdramatic when she started tearing up before the ceremony started. A teacher darted in with a kleenex. It was all a bit sloppy.

Then the music started. Pomp and circumstance played by the music director, who is also our neighbor. The children walked down the aisle of the little church above the classrooms, dressed in their bright green caps and gowns.

And the tears started to flow! My tears! Cynical me, crying at the pomp and circumstance surrounding the montessori graduation.

What a shock!

Then I saw my girls.

And I was in awe.

They looked so big in their graduation gowns. They looked so beautiful. Their smiles were spectacular.

And thus the tears flowed some more.

“Mooooooooommmmm!” said my son. He was embarrassed by his mother’s tears, as boys usually are by such things. But not surprised at all. He knows me all too well.

My Braveheart Moment

For those not in the know, lacrosse is a barbaric sport. Sure there is padding to protect the arm and shoulder from whacks. Yes, there is a helmet to protect the head.

But it is a sport that involves a small, hard ball and sticks. And to be successful, there is a whole lot of whacking going on with those sticks.

It is not a game for the faint of heart.

To parent a child who plays lacrosse is also not for the faint of heart. At least that’s what I learned during the last game of the winter season.

It had been a fairly miserable season, for the most part. Filled with losses by many points. But on this, the last game of the indoor season, our team had played exceptionally well. At half-time, the score was 2 – 7, but by the end of the game, our team had tied the score, 8 – 8.

However, there are no ties in junior lacrosse.

So the ref called for the Braveheart. (You will not find college lacrosse players involved in a Braveheart; this is a play only found in junior lacrosse, apparently.)

In the Braveheart play, four boys take the field – two from each team, a goalie and an offensive player. First team that scores, wins.

On this, the last game of the season, I saw my son trot to the center line, the designated offensive player for our team. Apparently, he’d volunteered for this role. He was up against a fifth grader, a boy who was a year older, a year bigger than my son.

I was worried. Very worried. We’d seen this play just once before, last year, and it was exceptionally stressful to watch. And at that game, my son was not on the field.

Now he was the sole offensive player, THE boy who needed to score if his team was to win.

The ref dropped the ball. The fifth grader hustled and pushed and it looked grim for a minute. But my son did not give up. He pushed back. He fought for the ball.

And he came up with the ball. And he swiftly ran toward the goal. Crowd was screaming. I was screaming. He lined up the shot.

And missed.

The goalie ran out of the goal cage, got the ball, tossed it to his teammate.

My son hustled, but could not catch up. The boy threw the ball at our goalie.

And scored.

We lost.

And I realized why the Braveheart was given that name: if you lose, you feel as eviscerated as Mel Gibson’s character at the end of Braveheart, the award-winning bio pic about Scotsman William Wallace.

My son was devastated. Crushed. Feeling like he’d failed, that he’d let his team down.

He held it together until we got to the car, and then the tears came. So I said the only thing a mother could possible say in this situation.

“I’m so very proud that you volunteered for that exceptionally challenging play.”

And I was proud. I was proud that when a difficult moment came for the team, my son put himself into consideration. I was proud that he did not hide from the challenge. I was proud that the coach felt he was capable enough to be put into the Braveheart play. I was proud that he out-hustled the older boy at the face off.

For all those reasons, I was proud. But still, watching my boy lose was painful to watch.

We engage in sports for fun, for the physical activity, to pursue something we enjoy. But sometimes, we learn lessons that can be painful. We learn that showing up doesn’t guarantee a medal. We learn that even when we hustle to the point of exhaustion, the opponent can still out-hustle us.

We learn what it means to lose.

Losing sucks.

But in life, losing is inevitable. You simply cannot win every game every time.

What I want my son to know is that losing means defeat only if we decide to give up as a result of the loss. Losing should inspire us to work harder to achieve our goals and experience success. Losing us should force us to take stock of what we really and truly want out of our life, how we really want to expend our energy.

Spring lacrosse started this week. My son is out there on the field, working hard to improve his game. I know that as a parent of an athlete, there are more Braveheart moments in my future. I know that all I want is to experience the same kind of pride I felt when I watched my son during the final moments of the last game of the winter season.

I was proud because he worked hard and gave it his all. That made him a winner in the eyes of his mother.

Stand by me!

My girls had their very first school concert the other day. They’ve been seeing their brother’s concerts for years now and thus were THRILLED to be standing on stage the gym floor, belting out some tunes.

This year, the theme was kind of like a sock hop. Poodle skirts were worn by those girls whose mothers had lots of time to acquire/make them. My girls wore the other costume – jeans and white shirt.

Sigh.

However, my twinges of guilt over not supplying the poodle skirt vanished with the first note of the concert. I love watching school shows! I love them more than just about any other kind of entertainment. School concerts are filled with top performers and wiggly children and shy people who would rather be anywhere else than singing in public in front of a large audience of parents. (I had fallen in the latter category as a child – my heart goes out to the children who hate to perform!)

Three classes were represented at this show – 2nd graders, 5th graders and the kindergarteners. They placed the kindergartners next to the fifth graders. It was fascinating to see the growth we can expect in the next 5 years. The older girls were so tall and poised and beautiful. The kindergartners were so small and tiny.

In the kindergarten group, one girl in particular was not enjoying the show. She cried; she held her arms out beseeching her mother to rescue her. And well into the first song, the mother obliged, and the little girl was whisked away.

The little girl next to the shy child decided that she really didn’t want to participate either. She didn’t cry; she didn’t wait for her mother to rescue her; she just casually walked off the risers, done with the show.

That left the boy on the end standing alone. And when the kindergarteners all sang “Stand by Me,” and placed their arms around their neighbor, this boy had no neighbor to embrace.

So he stood there, singing passionately, and stretched his arm out, pretending to embrace the neighbors who’d fled.

A hilarious moment in a night full of emotion.

My girls were nervous prior to the show. I could tell. But they rose to the occasion. They sang. They did the dance moves. They embraced their neighbor when it was time to do so.

But in my mind, the night belonged to the little boy who didn’t let the absence of a neighbor inhibit him from performing as directed. He stood; he sang; he embraced the air; he was completely engaged in the show.

And the first school concert for my girls was a concert that was wonderful to watch.

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